TLB Reviews: Cezara Belly Support Panty

The Goods: Cezara Belly Support Panty

The Reviewer: Elise

cezara

The Good: Elise says . . . This panty is a great option for those looking for belly and back support. It can be worn on its own or over your regular underwear. It is a nice 90% cotton and 10% spandex fabric that is very soft. For those who feel that their belly is pulling their weight forward and straining their lower back this would be a great choice for supporting the belly weight and relieving back pain. The velcro closure helps to adjust the waist size as you expand during pregnancy and then shrink after birth. I had a belly support band that had the tendency to move around or scrunch up. The nice thing about the Cezara panty is that it will not move around since it is a belly support and panty in one.

cezara drawing

The Bad: Elise says . . . I don’t believe that there is a “normal” pregnancy. Everyone’s body grows and changes in different ways. However there are some common physical issues that occur during pregnancy. One of them is low back pain. I had a back ache for about a week early on during my pregnancy and then for the rest of the time I did not have any back issues, which is a rarity. Therefore I found myself not needing belly and back support. I preferred to wear light-weight bikini underwear that sat below my belly. I was feeling so physically good that I was able to teach dance classes up until the day I went in for my cesarean! This panty would have been great had I had back pain issues, but for my fitness level I did not find that it was necessary.

The Ugly: Elise says . . . The fabric is very soft, but due to my sensitive skin I did not like the thick elastic band. I was lucky to have a fairly painless cesarean recovery. I did experience some tender skin issues with my stretched belly. I found my stretched belly skin to be more tender than my cesarean scar! So for me this supportive underwear with the thick elastic band was not a good option. However for those in need of back support and incision protection these panties would be a great choice to look into.

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Tattoo risk while breastfeeding

We’re giving away some tattoo aftercare balm and a tattoo.  Seriously.  Keep reading.  But if you want to skip to the giveaway part, the short version is that if you’re using a safe, reputable shop, there is almost no risk to getting a tattoo while breastfeeding.  Which is good news if you’re breastfeeding and want to get a tattoo.  Woohoo!

open line work tree and bird arm tattoo

 

From time to time we’re asked on The Leaky Boob Facebook page about the safety of getting tattoos while breastfeeding.  While there isn’t a lot of information out there regarding studies done specifically on getting tattoos while breastfeeding, most health care professionals agree that as long as you are using a reputable shop that follows all the guidelines required for safe-handling and hygiene, there is no real risk to the breastfeeding relationship for the mother to get a tattoo.

Please note: don’t tattoo babies or small children, that would just be mean.

Just a few weeks ago, following Camp MommyCon near Denver, Colorado, I had a what has been a long planned appointment for my very first tattoo.  And yes, I’m still breastfeeding 2 year old Sugarbaby.  This appointment with Colin Kolker at Chroma Collective Tattoo Co. was in the works for a long time, generously gifted to help me realize a healing dream I’ve had for over 2 years to reclaim a spot on my arm scarred along my motherhood journey.  Colin helped me express my healing, inner strength, and the beauty that I have found along the way with a symbolic and meaningful tattoo that represented all of that to me.  You can read about the story and meaning behind my tattoo here.

 

open line work delicate tree and birds tattoo

Before I even made the appointment, I answered all the questions I could on breastfeeding and getting a tattoo.  Personally I decided that the risk, while minimal, was enough for me to want to wait at least until Sugarbaby was over 12 months old simply because should something happen she would no longer be dependent on just breastmilk.  Even though I was confident nothing would happen.  Finances and opportunity pushed it back another year.  At that point I felt I was well informed on any potential risk and what I could do to all but eliminate even that.  Confident that it was safe, the only nervousness I had going into my appointment that evening was that it would hurt.

It did hurt.  I had tattoolas to help me though.  Because support makes all the difference, don’t you know.  Also, people, stop comparing tattoos to giving birth.  It’s totally different and just because I can handle pain when necessary (and I can’t actually stop it anyway) in order to push out a baby does not mean I’m not a wuss about other pain.  To be clear, I’m a total wimp.  Tattoos hurt.  About like you think it would hurt to be repeatedly stabbed and scratched with a needle.  Because that’s exactly what’s happening.  But the pain was totally worth it and in some spots it even felt good, kind of like a tens unit.  Other spots felt like torture.  Still, not like giving birth, the sensation is much less than that of giving birth.

mom tattoo Chroma Tattoo

Shout out to the MommyCon Tattoolas Laney, Xza, and Alyssa!

Here’s what I considered in making my decision to get a tattoo as a breastfeeding mother:

  1. Ink molecules are too large to get into the blood stream and milk.  Sugarbaby wouldn’t have ink flavored milk but I did love that Chroma Collective Tattoo Co. used nontoxic vegan ink they were happy to show me and explain.  This also meant I was less likely to have an allergic reaction to the ink as an immune response and made me feel more comfortable with my decision.
  2. The shop I chose meets all safety standards, sterilizing the equipment and practicing good hygiene.  Breastfeeding or not, seriously, this is a minimum.  Avoid infection by going to a clean, licensed, reputable shop.  They should have an autoclave, single-use inks, gloves, and needles.  Look them up on review sites and check with the local department of health to see if they comply with health code standards.
  3. My health was in my hands, if I followed the protocol for aftercare I would further reduce any risk of infection or possible harm to me and Sugarbaby.  I followed Colin’s directions exactly and not only did I not have any issues, using the Motherlove Tatto Care, I healed surprisingly fast and with almost no flaking or peeling.
  4. Tattoos have been a part of various cultures for a very long time and is legally supported.  Some tattoo artists may refuse to give a breastfeeding mother a tattoo but no major recognized medical body (such as the AAP or WHO) have issued warnings against the practice.  I felt history and science indicated that it was a safe choice for me.  The considerations put forth in this article were helpful.
  5. I don’t tend to have allergies so I wasn’t personally worried that I was likely to have an allergic reaction to the ink.

delicate tree and birds tattoo and breastfeeding

Tattoos aren’t for everyone and some who may want a tattoo may still feel more comfortable waiting until their nursling has weaned.  For me going through with my ink dream is something I’m incredibly glad I did knowing the risk was almost nothing.

I promised a giveaway.

nontoxic tattoo aftercare

And now… you can get a tattoo and take care of it too!  Motherlove Herbal Company is giving away their Tattoo Care to 3 lucky Leakies.  I used Motherlove Tattoo Care from the very beginning as part of my aftercare regimen.  Colin had instructed me to keep the area moist, not letting it dry out by rubbing in Motherlove Tattoo Care several times a day.  It worked like a charm.  Motherlove Tattoo Care is made with certified organic ingredients, handcrafted in Colorado using the same tried and true organic ingredients that have been trusted in other Motherlove products for over 20 years. This thoughtful formulation of herbs provides optimal moisturizing and healing properties, yet retains a consistency that is comfortable to apply. Unlike petroleum based products, Motherlove Tattoo Care allows the skin to breathe, promotes quicker healing, and allows ink to fully penetrate the skin.

Chroma Collective Tattoo Co. Giveaway

Tattoo in progress selfie!

 

We’re also giving away a 2 hour session with Colin Kolker at Chroma Collective Tattoo Co. in Parker, Colorado (outside Denver).  One lucky Leaky will win a  2-hour custom tattoo session at Chroma Collective Tattoo Co. in Parker, Colorado with artist Colin Kolker. Value: $300 but no cash value. Gift Certificate will be mailed to winner or can be picked up at the shop.  Some restrictions apply.  If the piece is more detailed/larger, the winner will be responsible to pay any remaining difference. If the tattoo takes less than 2 hours, the remaining balance cannot be rolled over into a second tattoo/session- good for one session only. Colin is booked pretty solid but has a few availabilities in Sept/Oct and on so there could be a wait time for an appointment.  Must be 18+ and the winner is responsible for their own transportation to and from the Parker, Colorado shop location.

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TLB Reviews: My Baby’s Heartbeat Bear

The Goods: Heartbeat Bunny from  My Baby’s Heartbeat Bear

The Reviewer: Elise

The Good: Elise says . . . Stuffed animals are fun toys for your baby. The stuffed animals from My Baby’s Heartbeat Bear are not only fun, they are incredibly special. I never would have thought to record my baby’s prenatal heartbeat, but I am so glad I did. The site has many different animals to choose from. I received the bunny and it is a high quality stuffed animal and so soft! It may sound silly, but in the days before I had my baby I would hug the heartbeat bunny and listen to my baby’s heartbeat and feel so comforted. My birthing instructor had just told us to find sensory objects to bring to the hospital to help during the birthing process. The heartbeat bear is a perfect object to bring as it fulfills both hearing and touch. The directions for recording are simple and easy to follow. It is a great keepsake and I know it will be neat to show to my son when he can understand that he is listening to his heartbeat when he was in my belly!

heartbeat bear

The Bad: Elise says . . . This may not be on your list of necessary items. When I was preparing for my baby’s arrival I tried to weed out all the unnecessary items. This stuffed animal probably would not have made the cut. However I am so glad I have it! Although it may not be necessary for the care of your baby, I think all mothers should have one. I thought it might be awkward to ask my ob-gyn to help me record the heartbeat. I thought I might interfere with the important elements of the check up, but she was very supportive and helpful. Although this was the first time someone had asked to record the heartbeat during a check up she was more than willing to help. I cannot think of a better way to record your baby’s heartbeat. It will be treasured for many years!

The Ugly: Elise says . . . There is a little switch that you have to tape over on the recording device that goes in the bear. If it accidentally gets switched back it will delete the heartbeat recording! This is a little nerve wracking. Luckily they have a way to store the recording online so if it gets deleted it can be retrieved. Make sure not to skip that step!

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A 14 year old girl’s thoughts on breasts, breastfeeding, sex appeal, and society.

Reposting this article from last year, at a time when there is public outrage and debate about women posting photos online of themselves breastfeeding and arguments rage about how appropriate inappropriate it is to breastfeeding in public,  it seems timely to share the thoughts of a 14 year old girl on what messages she sees in the world of breasts, breastfeeding, sex appeal, and society. 
by Ophélia Martin-Weber
Photo credit Dorothea Lange, 1936 Library of Congress, American Memory

Photo credit Dorothea Lange, 1936 Library of Congress, American Memory

I wonder when people started treating boobs as objects used just for sex.  A long time ago did people respect moms and their breasts feeding hungry babies?  Even though they didn’t see women as equal did they know that breastfeeding was the healthiest, easiest, and natural source of nutrients to feed the baby and nothing to shun?  There was a time when women didn’t have the right to vote but could freely pull out their breast and feed their baby and today it seems like we have flipped those.  In some ways we have come so far in how women are treated and viewed in society but in other ways women, particularly mothers, are dismissed as their real value being only in their appeal to the opposite sex.  I wonder if we’ve lost something.  Then I wonder what that means for me and I’m only a 14 year old girl. When I was younger I didn’t know breasts had amazing powers to produce milk even though my mom breastfed my sisters and me.  All that I knew was that I had little boobies and I couldn’t wait for the day when my nipples would transform into breasts.  I don’t remember when the fact that mature breasts can give milk really stuck in my head but when it did I thought humans were related to cows.  Sure, humans and cows are both mammals but when I was a kid I thought maybe women actually were cows.  Today I know that’s not true and I also understand there is a lot of attention given to the sexiness of the female breast and that makes me uncomfortable.  Uncomfortable because now that I have breasts I find myself wanting smaller breasts in part because I’m a ballerina but also because I know that bigger breasts are supposed draw attention from guys, are seen as more sexy, and could decide how I am treated by others.  Part of me feels that if I want to be liked I have to have big breasts.  I want guys to notice me but I don’t want guys to notice me (yes, I know this is a contradiction) and I really don’t want them to think I’m just here to have sex with.  I’m just not ready for that and don’t know if I ever will be.  To me, I’m so much more than my sex appeal.  So I’m careful about what I wear, I don’t want communicate that I want attention based on sex but that frustrates me too.  The clothes I like the best and find most comfortable are more form fitting but if I wear yoga pants that fit my butt well will it be communicating that I want the wrong kind of attention?  Or in a leotard are my breasts speaking louder than my mind or my art?  I hope not.  I want to matter to others for more than just my body.  As a dancer, I work with my body a lot and I work hard to make it strong and healthy but not for attention.  That work is to help me tell stories, to use my body as an artist and an athlete.  Struggling with my body every day is part of my lot as a dancer and I have a love hate relationship with it and I’m ok with that.  What I don’t want is to question my natural biology simply because of how others say it should be.  Sometimes it feels as though society wants to punish those with female body parts yet tell us we’re equal without having to act like we really are.  I don’t get it, I understand that breasts are considered sex things but they don’t seem any more “sexy” than most of the other parts of my body such as my lips, my arms, my shoulders, my legs.  Men may find them sexy (is it that way in every culture or just ours?) but they aren’t sexy to me, they feed babies. Urban ballerina Looking back to what my childish mind was thinking and comparing it to some people’s opinions about moms openly breastfeeding in public, I wonder if they too see breastfeeding moms as cows?  Do breastfeeding mothers need to be fenced and herded together, separate from everyone else?  I know there are people that think about moms that way but not everyone does.  A lot of my adult friends have different opinions about breastfeeding but they don’t think poorly about my mom and they don’t ask her to cover when she’s feeding my little sister.  It doesn’t bother them that part of my mom’s breast is visible.  Pictures of beautiful and sexy women show off breasts at least as much as a mom’s breast is seen when she is breastfeeding.  In our culture, what is the most sexy part about women’s breasts?  The breast that is popping out of a too small shirt or the covered nipple?  Why?  If it’s the nipple, why is it such a big deal about breastfeeding in public if the baby is hiding the nipple?  Maybe it’s understandable because of the messages we get from certain parts of society, they might think it is sexual because a person’s mouth, even if it is a baby is on a woman’s breast but they need to get a grip and review their history lessons.   And also learn how breastfeeding works. Why is it ok for men to show off their mammary glands but women can’t?  Why aren’t women “allowed” to expose their chest as much as men can?  Why is it considered indecent for me to be topless by my neighbor across the street can walk around just in his shorts and nobody has a problem with it?  How is that equal?  How is that not discrimination?  Stop telling me I can be equal to my male counterparts but then tell me I have to hide my body more as if there is something wrong with me. I’m not sure I even want to have babies but if I do I will breastfeed them though I have to admit the idea of breastfeeding in public scares me because I know how people think of breasts, women, and moms.  That kind of attention isn’t what I want for myself.  I don’t know what I will do though because I know too much about breastfeeding to not breastfeed and I don’t think I’d want to just stay home all the time.  How sad is it that anyone would be afraid to feed their baby in public?  I’m a little disappointed in myself for feeling this way, I mean, my mom is The Leaky Boob, I feel like she’s the queen of breastfeeding.  But that’s where I am right now.  Fortunately, I have a long time to figure that out and I know I have a family that will support me along the way. If all this obsession with female breasts didn’t actually happen, what would life be like?  If we could change the attitudes against breastfeeding would we actually change attitudes about women?  I hope we can learn from our mistakes because I think people are being hurt by the accepted cultural attitudes of social norms.  And I’m still young, I have to have hope.

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What do you think?  

Do you feel attitudes about breastfeeding are related in any way to our attitudes about women in general?  

How did you think about breasts, breastfeeding, and your own body when you were a teen?

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Completely unrelated to this post, this video shares the author’s story of dance, her dance aspirations, and her current project.

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teen ballerina Ophélia Martin-Weber is 15 years old, the eldest of six girls.  Ophélia is in 8th grade, homeschooled, and is passionate about dance.  A few years ago Ophélia wrote for The Leaky Boob, sharing her views as an 11 year old on breastfeeding and Jessica recently shared a proud mama moment about Ophélia.  You can see some of Ophélia’s dancing and hear her share her dance story and dreams in this video.
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TLB Reviews: Bamboobies Nursing Bra & Nursing Shawl

The Goods: Bamboobies Brahhh & Chic Nursing Shawl

The Reviewers: Kileah and Amy

The Good: 

bamboobies braKileah says…Really was suprised with how much I liked the Bamboobies Brahhh. I am ever the skeptic of anything that might resemble “restricting”…for workout or yoga or anything. This bra did not disappoint! So soft, supportive, forgiving to the ever-changing amazing post-partum  breastfeeding breasts…I loved it! No weird seams to dig into my skin (ladies, I am VERY sensitive to seams/rough edges in clothing!). I was so comfortable in it that I wore it to bed. WIN.

As far as the Chic Nursing Shawl goes-I have to tell you a cool sunburn story. So I was silly and got myself a niiiiice sunburn (read: YEOWCH MY SKIN IS ON FIRE.). I couldn’t bear to have anything on my skin but a loose-fitting tank…and this shawl! It was soooo incredibly soft, chic, and gentle on my skin. It was like this soft cool fabric that KEPT COOL even on the 93F day we had. It also served as a genius fashion choice when my 2 year old hobbit wanted to play “yank-the-nipple” with me while breastfeeding at our community gatherings. Plus? Makes an AMAZING jedi cape on the fly. Just saying.

bamboobies shawlAmy says… I start wearing different bras about .02 seconds into my pregnancies, because my boobs are the first thing to change (and scream, “Hi! PREGNANT!”). At that point, stretchy is best for me. I’d say this is a great maternity-through-breastfeeding bra. I love the lotus flower design (hey, it’s the little things!). As far as nursing goes, it pulls to the side easily. It’s a cotton-based material (organic, actually!) and I thought it would lose its shape. Even in the early days of nursing (when I was pulling it to the side practically hourly), it stayed supportive .

And the shawl? Maybe it’s just me, but my body went through major size changes between the last few months of my pregnancy and the first two months postpartum. After I had my baby, nothing fit; not my maternity stuff, not my pre-pregnancy stuff. I wasn’t about to go buy a new wardrobe, so adding this shawl in over a stretchy nursing tank was my move. (It’s very pretty over a maternity tank, too!) It gave me some fabric to work with for privacy while the baby latched (it was a bit of an all-hands-on-deck experience and while I’m A-ok with nursing in public, having a little coverage to get the tongue-tied baby on was nice). It also made me look a little more put together than I would have, otherwise.

Bamboobies BrahhhThe Bad:

Kileah says…I don’t have enough of the Brahhh. I need more. MORE!

I think I’d love to see a grey option in the shawl as sometimes black/plum can be a bit limiting to some wardrobes.

Amy says… I’d like a tiny bit more cleavage coverage on the bra (it dips in the middle), but that’s just me.  I had a little trouble learning how to wear the shawl. That sounds kind of stupid, but I’d put it on and I wasn’t sure how it was supposed to go or be styled or look once it was on.

The Ugly: 

Kileah says…Nothing ugly here. Two hobbit thumbs up!

Amy says… A couple times, the straps let the front of the bra ride down and end up pretty scrunched in the under-boob area (that’s the technical term). It may have been from wearing it for a couple days straight, so your mileage may vary.

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Bamboobies wants to hear from you!  And so they are offering  a giveaway featuring their Nursing Brahhh and Nursing Shawl to 3 lucky Leaky winners (winner’s choice of either the bra or the shawl).  We hope the winner will come and add their two cents in the comment section and on our Facebook page.  Good luck!  Due to shipping and customs constraints, this giveaway is open to USA residents only.

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Leaving the parenting island and asking for help

by Jessica Martin-Weber
Parenting Island and asking for help

Parenting Island AKA Poop Rock.

 

I was struck by the beauty of that island looking rock from afar on the shore in San Francisco.  Then my friend told me it was so pretty because it was covered in bird poop.  Poop Rock.  Reminded me a lot of parenting, pretty from afar but sometimes lonely and covered in poop when you get up close.

Don’t lecture me, I know parenting is wonderful, I love it but that doesn’t mean it’s not sometimes really hard and stinky like a rock covered in poop.

Last week, my good friend Cindy was battling pneumonia.  It was horrible and scary.  Her husband is in the military and away at the moment so she and her 4 children are on their own as she struggles to get well.  I couldn’t get to her, we’re over 8 hours from each other in different countries, but I wish I could.  Every time I saw her share something of her struggle I was moved, inspired, and ready to jump in the van (that broke down 4 days after I wrote this).  Through Facebook, I feel like I get to keep up with my friend and in some small way offer support.  I wish I could do more.  Yet even so sick and all the way in Canada, my friend reminded me of something incredibly important: we all need help from time to time.

Asking for help is one of the hardest needs to voice sometimes.  Or all the time.  People judge and are judged for even needing help and we all feel it.  There is such shame attached to needing help or even encouragement.  We’re all supposed to pull ourselves up by our bootstraps and in made for TV moments, triumph over whatever challenges we face.  Alone.  Without resources.  Without bragging. Without getting anything we don’t deserve because by our own blood, sweat, and tears we paid for it or worked for it or fought for it all on our own.  We talk about the strength of the human spirit and applaud those that figure out how to go it without help.  And anyone that is worn out, broken down, or overwhelmed must be less of a person.  Even in a safe place, like The Leaky Boob Facebook, mothers (and sometimes dads too) may take the bold step to admit they are struggling but do so with trepidation, beating themselves up for being a “horrible parent, feeling like a failure” before someone else does, all because they find parenting hard sometimes.

This cultural attitude of glorifying individualism and self-sufficiency is hard enough when children aren’t involved, but when we become parents it’s not just us any more.  Our pride can get in the way of seeking out desperately needed help.  Pregnancy and childbirth set the precedent in parenting without help and while I love doulas and highly recommend having doula support for birthing women (I have for mine), traditionally the role wasn’t a paid position but one filled by a family member, friend, or a member of the community.  There seems to be a growing sense of shame in needing help from someone who isn’t designated as a paid professional.  We see it in infant nutrition all the time, mothers struggling but too embarrassed to admit breastfeeding isn’t working as well as it “naturally” should as she struggles with pain and a frustrated baby or families not knowing where to turn when they need an alternative.  In fact, the number one reason mother’s don’t reach their personal breastfeeding goals is lack of support.  Support = help.  But it certainly isn’t isolated to the area of infant nutrition, pregnancy, and child birth.  Parenting dilemmas such as health care, child care, discipline, education, financial stress, housing, safety, you name it, are often hindered by our own pride in asking for help.  As though needing a helping hand occasionally, let alone for a long season, is an indication of inadequacies or failure.  Afraid it reflects badly on us and our abilities, many parents forgo voicing their need for support and actual help because we know people will say things like “you shouldn’t have had children if you couldn’t handle it” (what are parents supposed to do, put the kids back from where they got them?), we suffer quietly and so do our children.  Sometimes it’s major roadblocks that threaten the health and safety of the family, particularly the children, others deplete personal internal resources and reinforce feelings of failing over every day aspects of parenting that may wear us down.  Either way, while learning to deal with hardships and having the experience of overcoming them on our own once in a while can be empowering, is this isolation really what we want to be the norm?

But the truth is we all benefit when we help each other, yes, even when we admit we need help and ask for it.  Not only individually are we strengthened, our communities are too.  It can be risky though, by admitting our struggles, we’re opening ourselves up for criticizing judgment or worse, being ignored and that is more than hard, it’s down right terrifyingly heart breaking.  Most parents would do anything including swallowing their pride to care for their children, there’s not a job we wouldn’t work or begging we are above when it comes to the safety and provision of our children.  That fear though, the fear of judgment or of not mattering enough for someone to even notice, can be paralyzing and parents may, unintentionally, cause suffering for their children simply because the cultural attitudes about asking for help have effectively silenced them for issuing the call when most needed.  Yet almost no parent would say their child deserved less.

Asking for help is something I continue to grow in along with knowing how to offer help, carefully avoiding judgment.  Including learning how to have grace without judgment for myself.  The journey hasn’t been easy and I’m still learning.  How does one master admitting you can’t do something on your own?  That you don’t have it all together and need others?  I’m not sure yet but I know it has gotten easier for me simply by looking at my children, I never want them to be afraid to ask for my help when they encounter difficulties.  They have not only been my inspiration in seeking out help when I need it, but sometimes my teachers.  They have shown me the joy that comes from helping and being helped, the agony that comes from pride getting in the way.  From communicating my need for help during difficult pregnancies to admitting I don’t know how to handle certain parenting situations, to finding a mentor in understanding child development when my children were driving me crazy to even asking for financial support because we lack the funds required to help our daughter reacher her dreams, though Jeremy and I work hard for our family, admitting we can’t always do it on our own and that we’re not an island but in fact need the village, our children are the ones that have benefited the most from us humbling ourselves to say three little words: “help me please.”  Accepting our limitations is the first step in being able to strengthen each other.  I firmly believe that in strengthening, supporting, and yes helping, parents makes for a healthier community that is stronger, more creative, and more skilled.  What a gift we can give our children.

My friend Cindy, has posted on Facebook a few pleas for help with her children so she can rest.  Yes, she could keep trying to go it on her own, likely prolonging her illness and a lower level of care for her children while she tries to recover.  There are risks to her not recovering, potentially problematic for those around her.  Worse, she could end up in the hospital and her children in the custody of someone else for an indeterminate amount of time.  It is to her health benefit, the benefit of the health care system, the benefit of her children, and the benefit of her friends for her to ask for help.  Her recovery will be aided and the community circles around her will be stronger as a result.  Relationships are being fortified as her friends respond to her pleas and offer their support not only physically but emotionally and spiritually as well.  I am so incredibly proud of her asking for help.  Knowing her personally I know that she is a capable, strong, and hard working woman, talented as a journalist and an attentive and loving mother.  This moment of needing help (and the next one that comes her way) are not a reflection of her capabilities, simply a moment where her humanity is evident.  And she has already paid it forward and will do so again.  Because she gets that we need each other.  We all do.

 

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Breastfeeding, Autism, Sensory Processing Disorder, and Oral Phase Dysphagia

This guest post shares a look from the perspective of a mother with a 5 year old son with neurological disorders.  Jeanie decided to share her story after seeing a thread on The Leaky Boob Facebook page asking about breastfeeding issues as potential early signs of neurological issues in an infant.   Whether you recognize yourself and/or your child in

autism and breastfeeding

My name is Jeanie and I am the author/page admin for a blog and Facebook page called Reinventing Mommy, which is all about raising my 5 year old son with Autism and multiple neurological disorders. I want to share my story in hopes that others will learn that feeding difficulties can be an early red flag for developmental concerns…

My son Jack was born on March 23, 2009 after 28 hours of labor which resulted in an emergency c-section. I had preeclampsia during the last 4 weeks of my pregnancy, so Jack was born at exactly 37 weeks. Due to the nature of my delivery, I wasn’t given the opportunity to nurse my son in the recovery room. No one even suggested it. I didn’t know it was even an option. 

The first time I nursed Jack was in our postpartum room. One of the floor nurses tried to assist me in latching the baby on and – for all I knew – it was going great. The nurse mentioned that she would be sending lactation in to see me ASAP the following day (it was nearing 11:00 PM); her reasoning was that babies born prior to 38 weeks got an automatic referral to lactation. She suggested that I send the baby to the nursery that night so I could recover a bit further, and that the baby would be brought to me to nurse. I agreed. 

The next day a lactation consultant came in. I was planning to show her just how great I was doing nursing my baby – clearly I didn’t need her at all! – but instead I was told that not only was my son not latching on at all, he wasn’t sucking properly. This began a journey of using a nipple shield, suck training, and an every 3 hour schedule of nursing Jack for 15 minutes per side then feeding him a supplemental bottle then pumping for 15 minutes. All this while recovering from major abdominal surgery. Every day I was hospitalized, lactation consultants were in and out trying to assist me. 

When I was discharged, lactation continued with phone consults. Jack’s pediatrician was of little help. No one ever said that Jack wasn’t eating normally. I just thought that this was what everyone went through. I was constantly assured that all babies can breastfeed and that I just needed to work harder. The pressure on me was enormous. I felt like a failure. 

Then came the day that Jack refused to take to the breast at all. He simply would not open his mouth for the nipple shield at all. My milk was drying up from the lack of stimulation and Jack wasn’t gaining weight, so we finally gave up and moved to a bottle and formula. 

The problem was that Jack’s feeding issues didn’t resolve with the bottle. Now that he was actually taking in liquid, he began to vomit his entire meal about 5-6 times a day. When I mentioned how much he would “spit up”, I was told that the amount really was probably no more than a couple of tablespoons. What no one truly understood was that he could fill a bowl when he spit up. No one listened when I voiced my concerns that Jack’s eating behaviors didn’t seem typical. Again, I felt like a failure as a mother, because I couldn’t do something as simple as feed my own child. 

At the age of 24 months, Jack was only able to eat purées. He couldn’t self-feed. He was nonverbal. He couldn’t climb stairs or jump. The only sounds he produced where grunts. He spent his days pacing the room and flapping his hands. He was diagnosed with Autism and – finally – someone was willing to listen to our feeding concerns. 

Jack’s developmental pediatrician and his therapy team listened to us, and we got names for what we were seeing – Oral Phase Dysphagia, which is a neurologically-based lack of coordination of the chewing and swallowing mechanisms, and Sensory Processing Disorder. Jack literally didn’t have the muscle tone in his facial muscles to chew foods, he couldn’t manipulate foods in his mouth, he couldn’t coordinate his chewing with his swallowing, but this was all assuming that we could get the food in his mouth in the first place because he was so defensive. In many ways, it was vindication in that I was not a failure as a mother, but my heart sank at knowing that my little boy had such a long road ahead of him. 

Fast forward to now…I just gave birth to my second son 8 weeks ago. My one fear – even more than him having Autism as well – was that he would have similar feeding problems as his brother. That has not happened. My new baby Andrew nurses like a champ. 

As for my sweet Jack, he works harder than any person I’ve ever known. He is an inspiration to me each day. He now speaks, though he still has a significant speech delay. He can eat foods that are either very crisp, like crackers, or bready foods. He eats about 6 foods consistently and several others intermittently. He will continue to require feeding therapy for years, but he is making slow yet steady progress. 

If there is one thing I could pass on to others about feeding concerns, it would be this – go with your gut and trust your instincts. If you feel like you child is truly struggling with feeding, don’t let doctors or anyone deter you from looking into it further. Contact Early Intervention services in your county for an evaluation, or get your child evaluated by a feeding therapist. With therapy, many children with feeding issues can expand their food repertoires, learn to enjoy eating, and become more proficient eaters.

 

Editor’s note: Does your child have a sensory processing or neurological challenges? Do you feel that has that impacted your feeding experiences? Sometimes breastfeeding problems aren’t breastfeeding problems but actually indicators of something else. I’ve heard from several moms of the last 4 years that have tried everything in addressing their breastfeeding struggles only to discover years later that there was (seemingly unrelated) neurological issues. From somewhere on the autism spectrum to high sensitivity, they have wondered if there is a connection. Maybe baby refuses to latch or latches all the time and overwhelms mom with constant breastfeeding. While it may be something else entirely, some moms do see there is a connection later on when their child is older.

I would love to hear from you if this has been a part of your journey, please comment below, share your thoughts, and if you’d like your story to be included on the website, please email content@theleakyboob.com. Thank you all so much!

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Will you allow me a proud mama moment?

This post was originally published in 2013, updated for 2014 by Jessica Martin-Weber

Sometimes it seems like these days of breastfeeding, diaper changes, and needy babies are going to last forever.  We fear losing ourselves in the blur of caring for our children.  Counting diapers, checking ounces, charting milestones… every day becomes so full it doesn’t seem like this time will ever really end. I always hate it when “they” say to hold on to this time, it goes so fast and the next thing you know you’ll be sad how fast they grew up.  It never really helps me, just makes me question if I’m ungrateful and selfish to not savor the poop filled, constantly breastfeeding stage when I’m tired and worn out.  And I have had moments where I’ve been convinced that my child would be the first child to actually still be breastfeeding when they go to college. But you know what?  “They” are right.  I have 6 children, 6 beautiful girls ages 2 years to 15 years old.  I blinked, you know, blinked and I have a 15 year old.  I could swear she was just a baby.  And no, she’s not still breastfeeding.

Help Ophélia Martin-Weber go to summer dance intensives

“They” are totally right. It goes so fast.  Faster than saying can even convey.  And it is so bittersweet.  One day you feel stuck in a whirlwind of diapers and boobs and the next you’re helping them plan leaving for the summer.  Or forever. Over 15 years ago I was made a mother when The Piano Man and I had our eldest.  Some days I look at her and remember the breastfeeding challenges I encountered with her and smile to think how far we’ve come and how distant that time feels.  Yet how very close still.  She helped mold and shape me to not only be the mother she needed but also to help form me to be the mother her little sisters would need and even set me on the path that led to starting The Leaky Boob.  I have shared the breastfeeding journey she and I experienced together, why I breastfeed for her even today, shared some of her sexual abuse survivor story, and she’s even written for The Leaky Boob herself sharing her views on breastfeeding just before she turned 12.  I am one proud mama. We named her Ophélia Chantelle, which means little helper, little song but I call her Earth Baby here to give her a little bit of distance between her real life and what I share online.  She’s not completely anonymous.  With her permission I’ve shared her face, her name, and parts of her story.  She follows The Leaky B@@b and Beyond Moi and has seen conversations I’ve had and from time to time she will help make a post using my phone and taking dictation while I’m driving.  Thanks to her questions and sharing her thoughts, I’ve been inspired for articles, status updates, and tweets.  Her critical thinking has pushed me to reconsider my views on some topics and to open myself up to considering other perspectives.  Her giving, kind, and generous heart moves her to care deeply about others and inspires me to do the same.  I am one proud mama. Giving and full of love, she is a model big sister, making room in her life to play with her 5 little sisters in ways that are meaningful for them from building forts to playing peek-a-boo to going on walks to games of Battleship and climbing trees.  Creativity exudes from her, she knits, bakes, draws, writes, and above all, dances.  Her heart is big and she cares deeply not only for her family but friends and even strangers.  Sharing meals with homeless members of our community, volunteering to help others with babysitting, donating her funds when she can, volunteering for local and international efforts, and even making the choice to prioritize fair-trade chocolate so the treats she enjoys don’t oppress another child.  I am one proud mama. She loves learning and is willing to take risks to pursue what she loves.  An introvert, she is growing every day in understanding herself more and putting herself out there.  Nothing brings that quite together like dance does and in just 3 years we’ve watched as she went from the girl turning 11 and begging for ballet lessons more than anything, even saying to us “I don’t care if I ever get an iPod, a cell phone, or a car, I just want to dance!” to today blooming into a young ballerina with opportunities to pursue her dreams.  Bloodied feet and being behind most dancers her age have never deterred her, just spurred her to work harder until she caught up.  This past January she pushed herself to a new level and attended auditions for summer ballet intensives with hundreds of other students, most of whom have been dancing at least twice if not three times as long as she has.  It was scary but she did it.  I am one proud mama. It was worth it too.  She got into most of the programs for which she auditioned.  Consulting with her instructors and with The Piano Man and I, she narrowed down her choices to 2 programs.  Before she was even sure of where she wanted to go she began baking, running an ongoing bake sale to raise the funds that would be required to attend these training programs.  In a few weeks she raised enough to cover the registration to the two programs she selected.  I am one proud mama. So it is from that place that I share her efforts and invite you to hear from her as she works to reach her goal.  Putting it all out there, she’s raising the funds to get to these summer ballet intensives to train further.  Employing the help of her sisters and her father and me, she created a video and fundraising campaign to try and get the rest of the funds before the deadline.  We had hoped for scholarships but that didn’t happen this time around and the costs involved simply are not in our budget, all the scrimping and saving couldn’t make it so.  The sisters worked together to plan, film, and edit the video sharing Ophelia’s love for dance and her willingness to work hard for her dreams.  I am one proud mama. It’s not easy for her to ask for funds to reach these dreams, doing so is just one more indicator of how motivated she is to take risks and work hard towards her goals, goals that include helping others and using her talents to be a voice for the voiceless.  A tenacity that will serve her well through out her life, I believe.  Check out her fundraising campaign, it’s worth watching the video even if you’re not able to donate.  I’m sharing this and I hope you watch it then share it too because I’m one proud mama.

https://m.youtube.com/watch?v=j9wzWcV_gSs

Last year’s video, it’s amazing to see how much one year changes things even at this age! http://www.youtube.com/watch?v=ycG-NW1UGno

From a needy little baby to an increasingly independent young woman, I am one proud mama.  Thanks for letting me have a proud mama moment! See her fundraiser here, every contribution, big or small, helps:

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Hyperemesis Gravidarum and Ondansetron: a critical response to media coverage

by Kari Swanson

In the interest of full disclosure: I am the survivor of two pregnancies with Hyperemesis Gravidarum during which I was given Zofran and/or ondansetron. Both of my children, currently ages 9 and 4, are developmentally normal, with no health problems attributable to my use of ondansetron.

 

Birth defects from Zofran in pregnancy

A recent headline in the Toronto Star proclaims in bold face “Birth defects blamed on unapproved morning sickness treatment.” The lengthy piece about the drug ondanestron, which is sometimes prescribed off-label to women with Hyperemesis Gravidarum (HG), is written as an exposé of drug companies and physicians gone wrong, the result of which is “vulnerable” pregnant women being prescribed a harmful drug that causes their babies to be born with extraordinary birth defects as a result. This would be horrifying if it was true, of course, but, it’s not. This article is not a scientific article. It is not a scientific literature review. It is pseudo-scientific sensationalism. One might think the goal of such an article would be to protect women and children, but like most pseudo-science involving medicine it presents very real public health risks.

According to the Hyperemesis Education & Research Foundation web site, HG is

“…a severe form of nausea and vomiting in pregnancy. It is generally described as unrelenting, excessive pregnancy-related nausea and/or vomiting that prevents adequate intake of food and fluids. If severe and/or inadequately treated, it is typically associated with:

  • loss of greater than 5% of pre-pregnancy body weight (usually over 10%)
  • dehydration and production of ketones
  • nutritional deficiencies
  • metabolic imbalances
  • difficulty with daily activities”

HG is not morning sickness. HG is just plain sickness. In my first pregnancy there were many days when I vomited in excess of once an hour. I lived with constant nausea. I vomited before getting out of bed when I woke up in the morning. I vomited in the shower. I vomited on the side of the road while driving to work. I vomited in my flower garden while weeding. I believe my record was 38 times in one day. I vomited so violently and so frequently at one point that tiny blood vessels broke in my face and eyes. It certainly wasn’t the pregnancy glow I had envisioned.

I tried all of the remedies that everyone, including my obstetricians, suggested: crackers, sips of water, lemon, ginger ale, ginger tea, ginger snaps, candied ginger, extra vitamin B, extra sleep. Nothing worked. I lost weight. At 3 months pregnant I weighed about 11% less than I did before my pregnancy. I had several visits to the ER for IV hydration. More than half way through my pregnancy, after an all-night stay in the ER for IV fluids, my OB finally prescribed Zofran. For me it was a miracle drug, because it meant that I was able to keep at least one meal down every day. It didn’t completely eliminate the symptoms, but it did make them much more manageable. When I became pregnant again 5 ½ years later and started vomiting numerous times every day at 5 weeks pregnant I asked for Zofran. I still experienced nausea and vomiting throughout my second pregnancy, but nothing like I experienced the first time. I only required IV hydration in the ER once the second time around.

HG presents serious risks to a woman’s health. Complications of HG include: dehydration, malnutrition, damage to tooth enamel, renal failure, jaundice, ruptured esophagus, and deconditioning of the heart muscle, just to name some. Some of these complications can be and have been fatal. In addition, HG can cause long term health effects. Some women experience PTSD. Others, like me, develop complications of their complications: prolonged dehydration caused me to develop kidney stones.

HG also presents risks to the child. Fetal complications of HG include: premature birth, low birth weight, neural tube defects, and congenital heart defects, among others. Also, according to the Hyperemesis Education & Research Foundation, “…prolonged stress, malnutrition and dehydration in the mother can potentially put an unborn child at risk for chronic disease (e.g. diabetes, heart disease) in later life.” And, HG can also cause fetal or neonatal death.

Clearly Hyperemesis Gravidarum is a serious health condition. It is not something that can be or should be ignored or treated lightly. Women die. Babies die. When considering treatment options, women and their healthcare providers must weigh the benefits and risks of particular treatments. The decision is not about a minor inconvenience. It is very often a matter of mitigating potential harmful or life-threatening effects.

The Toronto Star article cites data recorded in the US Food & Drug Administration (FDA) Adverse Event Reporting System (FAERS). The reporters cite this data as if it presents irrefutable proof that ondanestron is a dangerous drug that caused harmful effects to babies. But, the truth of the matter is it does no such thing. The FDA states on the FAERS site:

FAERS data do have limitations. First, there is no certainty that the reported event (adverse event or medication error) was actually due to the product. FDA does not require that a causal relationship between a product and event be proven, and reports do not always contain enough detail to properly evaluate an event. Further, FDA does not receive reports for every adverse event or medication error that occurs with a product. Many factors can influence whether or not an event will be reported, such as the time a product has been marketed and publicity about an event. Therefore, FAERS data cannot be used to calculate the incidence of an adverse event or medication error in the U.S. population.

Let me reiterate: the FDA does not require that a causal relationship between a product and event be proven. This means that random, purely coincidental health conditions may be reported as side effects of a drug. FAERS data are useful for looking for trends or potential side effects that might have been caused by a drug, but they are not proof that a side effect is caused by a drug. FAERS data should be used for further study. They should not be construed as concrete evidence of a causal relationship.

The use of ondansetron in pregnancy has been studied. The Toronto Star article sites some of the research, but a news article is not a scientific literature review. The reporters do not present the totality of research on the subject, and what they do present is presented in a manner that shows bias in favor of their own assertion: that ondansetron causes birth defects. There are, however, numerous other scientific studies that indicate otherwise. Anyone can easily research the topic for herself (or himself) by utilizing the freely available medical research database PubMed.

Although it has been studied, the use ofondansetron in pregnancy is considered an off-label use. It is unfortunate that the Toronto Star article presents off-label use of medications so negatively. Off-label prescribing is common and sometimes is the best or only treatment option for certain conditions. While it is true that sometimes off-label use of a medication might later be proven (by research) to be of no therapeutic value, or worse: harmful, sometimes off-label use later becomes an FDA approved use after further research supports it. According to WebMD certain beta-blockers once only used for the treatment of high blood pressure and used off-label to treat heart failure later became approved prescription treatments for heart failure.

Despite the fact that use of ondansetron to treat HG is off-label, the prescribing information for Zofran (ondansetron from GlaxoSmithKline) states:

Pregnancy Category B. Reproduction studies have been performed in pregnant rats and rabbits at daily oral doses up to 15 and 30 mg/kg/day, respectively, and have revealed no evidence of impaired fertility or harm to the fetus due to ondansetron.

Pregnancy Category B is defined by the FDA as follows: “Animal reproduction studies have failed to demonstrate a risk to the fetus and there are no adequate and well-controlled studies in pregnant women.”  The safety and categorization of drugs varies from country to country. For example, acetaminophen is US FDA Pregnancy Category C (less safe to use in pregnant women than ondansetron!), but in Australia acetaminophen is Australian Pregnancy Category A, which means Australia considers acetaminophen to be safer for pregnant women than the US FDA does.

Ondansetron is not entirely without risks or side effects.   The FDA, like Health Canada, issued warnings about potential heart risks, specifically a heart rhythm problem called QT prolongation. However, those risks very clearly apply to people with Long QT syndrome, those with underlying cardiac defects, those with low potassium or magnesium, and people taking other medications that can cause QT prolongation. They did not withdraw the drug from the market. Many thousands of people have taken ondansetron with no apparent harm to their hearts.

Furthermore, many women, including those who have not taken ondansetron or any other drug, give birth to babies with birth defects every year. According to the US Centers for Disease Control and Prevention (CDC), “Birth defects occur in about 3% of all live births.” Recent CDC data on the prevalence of birth defects in the US between the years 2004 and 2006 show an estimated prevalence of 4.71 in 10,000 babies born with atrioventricular septal defect, for example. HG is associated with an increased risk for fetal cardiac defects, but women without HG and who have not taken ondansetron also give birth to babies with heart defects. According to the National Heart, Lung and Blood Institute, “doctors often don’t know why congenital heart defects occur.” Leaping to the conclusion that the heart defect of one infant reported in FAERS was caused by ondansetron is wildly inappropriate.

I do not speak for all women who have experienced HG, but I and more than one of my “HG sisters” found the Toronto Star article disturbing. It is sensationalist journalism that has the potential to cause women or their healthcare providers to delay or avoid effective treatment at the risk of their/their patients’ own or their babies’ immediate or long-term health or even at the risk of their lives.

For another look at the safety of odansetron during pregnancy, see this Huffington Post piece breaking down a Danish study of 1,970 births where the drug was used during pregnancy.

 

kariswansonTLBKari Swanson, MLS, is a daughter, sister, wife, mother of two, member of Generation X and an admin for The Leaky B@@b Facebook page. She has been an academic librarian for 15 years. She blogs occasionally over at Thoughts from BookishMama

 

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The Leaky Boob Launches Product Review Program

by Jessica Martin-Weber

One of the best parts of The Leaky Boob community is the diversity of experiences.  No two stories or perspectives are exactly alike.  From breastfeeding to returning to work to our birth stories and introducing solids, our journeys are varied and complex.  When it comes to talking about products, this is even more apparent.  One person’s trash is another’s treasure.  What my family couldn’t live without, yours may find completely worthless.  It’s not unusual for me to be asked for my opinion or if I have written a review about a specific product.  The truth is I don’t really like writing reviews.  Some are a lot of fun and some, well, aren’t.  If I actually get the chance to write though, I don’t usually want to write about a product, it’s just not a creative or inspiring outlet for me.  Yet within our community be it here, on Facebook, Instagram, and Twitter, we often discuss topics that extend way beyond breastfeeding including various products and I discovered I am often giving casual, on the spot reviews anyway.  That doesn’t bother me, it’s just a conversation, but it hit me that even though I don’t care to write reviews, people are looking for them and because they already trust TLB as part of their community, it makes sense for them to seek that resource here.

Plus, there are so many great products out there from companies that truly support and value families.  Wanting to connect the parents looking and the companies with the product through honest, unbiased perspectives, we began discussing what it could look like.  With that, The Leaky Boob Review Program was born.  Believing that for a review to be unbiased, the reviewer needed to not fear that they would receive backlash from the company if they were critical.  Talking with Jeremy and then Amy West, we determined that we wanted to pay our reviewers independently so not only would they receive the product, they would be compensated for taking the time to evaluate and write a thorough review of the product, free of any pressure to make the company happy.  Continuing the approach to reviews already established on TLB, reviewers would go over the good, the bad, and the ugly of each product, to be as objective and trustworthy as possible.  Our reviewers were hand-selected by Jeremy and me and represent some of the diversity we see within The Leaky Boob community, communicate clearly in written word, and are able to give objective feedback on their experience with a product.  Being parents first, all of our reviewers are able to evaluate a product as any other parent would, not based on insider knowledge of the baby industry (both a handicap and an advantage) and would use it as any parent new to a product would.  Each new review launched in our review program is covered by at least 2 of the writers to provide 2 perspectives right off the bat and we encourage anyone to ask questions in the comments section of each review and anyone with experience with that particular product to comment on the review sharing their own personal experience review as well.  Together we will grow a resource of trusted, diverse reviews reflecting a wide variety of opinions and experiences.  Our review writers include a mom of 2 (preschooler and infant at the time of this writing), a husband and wife with 4 children (ages 6, 4, 2, and infant), a new first time mom of an infant, and occasionally parents of 6 and creators of The Leaky Boob, Jeremy or me.  Check out their bios here and get to know them through their reviews.

We’re going to continue our primary focus on supporting families in feeding their children, specifically when it comes to breastfeeding and breastmilk.  This new development won’t be taking anything away from our core purpose, merely adding to it.  In true TLB style, it’s more than just us, this new extension of our community will greatly depend on the input and connections shared in your own personal stories and support.

Help us make this a useful resource for you and others.  What products would you like to see reviewed?  How would you like our reviews to be different from others you have seen?  Please tell us what is important to you in a review.

I’m excited to see TLB grow in this way.  We’ve already been doing it, we’re just making it TLB official.

~Jessica

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